Our 22nd Annual International Conference will bring together families, clinicians, therapists, researchers, and pharmaceutical companies from across the world to support, empower and share knowledge.
The theme for this year's conference is ‘Educating, Connecting and Wellbeing’ with key areas on Duchenne muscular dystrophy, enabling you and your family to learn from the experts, build your support network and make time to focus on your mental and physical wellbeing.
Three simultaneous content streams will run on both days of the conference, providing one-of-a-kind insight into science and research, areas that can help people living with Duchenne thrive, mental health and wellbeing support for the whole family and resources that empower adults living with Duchenne. The agenda has been carefully designed to take onboard the feedback from the previous conferences and to adapt to the ever-changing landscape of Duchenne muscular dystrophy.
“Excellent content, fantastic speakers and well organised conference. We attended the conference last year and it changed our life forever. It was very nice to meet your wonderful self, Harry Hill and your team again. We met some of my best friends to this day and were able to share so many stories and memories with them. We would DEFINITELY recommend this conference to other families.” Duchenne parent
In addition to informative parallel talks, Action Duchenne also offers on-site Creche (0-9 years) and Hangout (10-17 years) facilities. The Creche is run by an independent provider and is packed with fun activities. The Hangout has evolved over the years to cater to the needs of the young people living with Duchenne and their siblings, allowing them to build relationships with others who truly understand.
You and your family are also invited to join us on Friday evening for a Dinner Dance Celebration to make it an unforgettable weekend.
“This was the first time my husband and I have attended the Action Duchenne Annual Conference. We received a diagnosis of Duchenne for our son four months ago and are very much in the early stages of learning about the condition. There was a lot packed into two days, but we thought the conference was excellent – interesting and relevant topics, good speakers and very well organised. This weekend we met some of the most incredible families and were able to share our experiences. Our favourite moment was when our daughter played in a band with Harry Hill and Florence – it’s so nice to see her laughing again! We are looking forward to next year.” Duchenne Parent
To find out more about what our conference can offer you and your family, look at our 2023 highlights here.
Thanks to the generous support from our sponsors, tickets are FREE for Duchenne families and anyone living with Duchenne. We look forward to welcoming you to the Action Duchenne Annual International Conference 2024.
Registering your interest for the Annual Action Duchenne International Conference 2024 will mean that you’ll be informed as soon as tickets become available. We will also keep you up to date with conference news, including the agenda and speaker confirmations.